Charlotte Handberg - RCFM

Charlotte Handberg

Seniorforsker, PhD
chha@rcfm.dk
- Rehabilitering og palliation
- Brugerinvolvering
- Tværfaglige og tværsektorielle udfordringer
- Kvalitative metoder
- Projektledelse og vejledning

Seneste publikationer

Evaluation of physical function before and after medical treatment in non-ambulant patients with spinal muscular atrophy aged 11-25 (poster)
Medical treatment of children with spinal muscular atrophy – An investigation of parents’ experiences of hopes, worries and need for rehabilitation for their child (poster)
Comorbidities and mortality of persons with adult-onset myotonic dystrophy (DM1) – a Danish register-based study (Study I) (poster)
Utilization and costs of healthcare services and labour market affiliation of persons with adult-onset myotonic dystrophy type 1 (DM1) – a Danish register-based study (Study II) (poster)

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Publikationer

Evaluation of physical function before and after medical treatment in non-ambulant patients with spinal muscular atrophy aged 11-25 (poster)

Ulla Werlauff, Annette Mahoney, Lene Klem Olsen, Pia Zinck Drivsholm, Runa Iversen, Lene Busk, Helle Laustsen, Birgitte Heiden, Charlotte Handberg

10/10 2024
Medical treatment of children with spinal muscular atrophy – An investigation of parents’ experiences of hopes, worries and need for rehabilitation for their child (poster)

Charlotte Handberg Ulla Werlauff, Pia Zinck Drivsholm, Sanne Okkels Birk Lorenzen,
Annette Mahoney

10/10 2024
Comorbidities and mortality of persons with adult-onset myotonic dystrophy (DM1) – a Danish register-based study (Study I) (poster)

Ulla Werlauff, Jan Håkon Rudolfsen, Henning Andersen, John Vissing, Charlotte Dahl Rossau, Pia Dreyer, Jens Olsen, Simone D Bengtsson, Heidi Aagaard, Charlotte Handberg

09/10 2024
Utilization and costs of healthcare services and labour market affiliation of persons with adult-onset myotonic dystrophy type 1 (DM1) – a Danish register-based study (Study II) (poster)

Charlotte Handberg, Jan Håkon Rudolfsen, Henning Andersen, John Vissing, Charlotte Dahl Rossau, Pia Dreyer, Jens Olsen, Simone D Bengtsson, Heidi Aagaard, Ulla Werlauff

09/10 2024
Living with adult-onset myotonic dystrophy type 1: a scoping review

Kristin Allergodt, Pia Dreyer, Ulla Werlauff, Charlotte Handberg

30/08 2024
Scand J Caring Sci . 2024 Aug 27. doi: 10.1111/scs.13295. Online ahead of print. School absence legislation governing in Norway, Sweden and Denmark for children with chronic illness in compulsory education-A comparative study

Sofie Skoubo , Charlotte Handberg, Mette Weibel, Hanne Bækgaard Larsen

27/08 2024
HAP-PEE: A Danish National Study of Challenges Related to Urinating When Away from Home in Women with Neuromuscular Diseases, Impact on Activity and Participation and Prevalence of Lower Urinary Tract Symptoms

Ulla Werlauff, Charlotte Handberg, Bente Kristensen, Sarah Glerup, Antoniett Vebel Pharao, Jeanette Strøm, Bente Thoft Jensen

02/07 2024
Perspectives of Young People with Neuromuscular Diseases Regarding Their Choice of Educational Programs and Possibilities to Complete Program Requirements

Charlotte Handberg, Helle Munkholm, Ann-Lisbeth Højberg

01/07 2024
Challenges Faced by Women With Neuromuscular Diseases When Having to Urinate Away From Home

Charlotte Handberg , Bente Kristensen, Bente Thoft, Jensen, Sarah Glerup, Antoniett Vebel Pharao, Jeanette Strøm, og Ulla Werlauff

25/06 2024
Experiences and reflections on living with a personal assistance service: a qualitative study of people with neuromuscular disease or spinal cord injury

Karoline Yde Andersen, Sophie Lykkegaard Ravn, Marlene Krogh & Charlotte Handberg

11/06 2024
Experiences of an Online Palliative Rehabilitation Programme for Spousal Caregivers of People With Amyotrophic Lateral Sclerosis and Cognitive and/or Behavioural Impairments: A Qualitative Interpretive Study

Olesen LK, la Cour K, Nimmon L, With H, Handberg C

09/02 2024
People with neuromuscular diseases and their relatives’ perspectives on challenges in everyday life and healthcare

Handberg C, Werlauff U

11/12 2023
Reflections of family caregivers and health professionals on the everyday challenges of caring for people with ALS and cognitive impairments: a qualitative study. (Poster)

Lene Klem Olesen; Karen la Cour; Heidi With; Charlotte Handberg

01/12 2023
HAP-PEE study 1 – Challenges faced by women with neuromuscular diseases when having to urinate away from home (poster)

02/10 2023
HAP-PEE study II – Going when you have to” – problems in urinating when away from home as a woman with NMD (poster)

02/10 2023
Telepresence robots to reduce school absenteeism among children with cancer, neuromuscular diseases, or anxiety—the expectations of children and teachers: A qualitative study in Denmark

Mette Wibel, Sofie Skoubo, Charlotte Handberg, Lykke Brogaard Bertel, Nonni Camilla Steinrud, Kjeld Schmiegelow, Inger Kristensson Hallström, Hanne Bækgaard Larsen

31/03 2023
Cross-sectoral collaboration among hospital professionals on rehabilitation for patients with neuromuscular diseases

Charlotte Handberg, Ulla Werlauff

30/03 2023
Perceived benefits from peer‐support among family caregivers of people with amyotrophic lateral sclerosis and cognitive impairments in a palliative rehabilitation blended online learning programme

Lene Klem Olesen, Karen la Cour, Sally Thorne, Heidi With, Charlotte Handberg

11/01 2023
‘It Becomes the New Everyday Life’ – Experiences of Chronic Pain in Everyday Life of People with Limb-Girdle Muscular Dystrophy (Poster)

01/12 2022
Mental health reported in adult invasive home mechanical ventilation through a tracheostomy: A scoping review

Martin Locht Pedersen, Charlotte Handberg, Pia Dreyer

01/12 2022
‘It becomes the new everyday life’ – experiences of chronic pain in everyday life of people with limbgirdle muscular dystrophy (Article)

Louise T. H. Vrist, Lone F. Knudsen & Charlotte Handberg

07/11 2022
New medicine for neuromuscular diseases: An evolving paradox for patient and family hopes and expectations

Annette Mahoney, Charlotte Handberg

19/09 2022
Cross-sectorial collaboration on policy-driven rehabilitation care models for persons with neuromuscular diseases: refections and behavior of community-based health professionals

Charlotte Handberg, Ulla Werlauff

17/09 2022
Reflections on the Complexity of Normalcy in Nursing and Health Care

Charlotte Handberg, Lene Seibæk, Sally Thorne, Kirsten Beedholm

18/08 2022
A cross‑sectional evaluation of acceptability of an online palliative rehabilitation program for family caregivers of people with amyotrophic lateral sclerosis and cognitive and behavioral impairments

Lene Klem Olesen, Karen la Cour, Heidi With, Annette Faber Mahoney, Charlotte Handberg

25/05 2022
A retrospective study of needs and interventions among patients with myotonic dystrophy type 1 in Denmark referred to rehabilitation in the period 2000–2019

Kristin Allergodt, Charlotte Handberg, Asger Frost, Ulla Werlauff

22/05 2022
Perspectives on Everyday Life Challenges of Danish Young People With Duchenne Muscular Dystrophy (DMD) on Corticosteroids

Charlotte Handberg, Ulla Werlauff, Ann-Lisbeth Højberg

27/04 2022
Reflections of family caregivers and health professionals on the everyday challenges of caring for persons with amyotrophic lateral sclerosis and cognitive impairments: a qualitative study

Lene Klem Olesen, Karen la Cour, Heidi With, Charlotte Handberg

15/02 2022
Prevalence of chronic pain in a national cohort of patients with limb-girdle muscular dystrophy: a cross-sectional study

Rikke Nicoline Stokholm, Charlotte Handberg & Lone F. Knudsen

15/11 2021
Investigating job satisfaction in palliative rehabilitation: Reflections and perspectives of health professionals working with amyotrophic lateral sclerosis

Tine Gamskjaer, Ulla Werlauff, Charlotte Handberg

J Eval Clin Pract. 2021 Jul 16. doi: 10.1111/jep.13599. Epub ahead of print. PMID: 34269500.

16/07 2021
Impact of the COVID-19 pandemic on biopsychosocial health and quality of life among Danish children and adults with neuromuscular diseases (NMD)-Patient reported outcomes from a national survey

Handberg C, Werlauff U, Højberg AL, Knudsen LF.

PLoS One. 2021 Jun 30;16(6):e0253715. doi: 10.1371/journal.pone.0253715. PMID: 34191825; PMCID: PMC8244874.

30/06 2021
I was worried about not being good enough”. Experiences and perspectives of parents living with a neuromuscular disorder – an exploration of everyday life challenges

Handberg C, Myrup P, Højberg AL

I: Disability and Rehabilitation. 2020

01/08 2020
“Understanding my ALS”. Experiences and reflections of persons with amyotrophic lateral sclerosis and relatives on participation in peer group rehabilitation

Madsen, Louise Sofia, Jeppesen, Jørgen, Handberg, Charlotte.

I: Disability and Rehabilitation, Bind 41, Nr. 12, 2019, s. 1410-1418

01/12 2019
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31/12 1980

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