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Ann-Lisbeth Højberg
Ergoterapeut, MSI
anho@rcfm.dk- Unge
- Skole og uddannelse
- Forældre med muskelsvind
- Rehabilitering
Seneste publikationer
- Perspectives on Everyday Life Challenges of Danish Young People With Duchenne Muscular Dystrophy (DMD) on Corticosteroids
- Impact of the COVID-19 pandemic on biopsychosocial health and quality of life among Danish children and adults with neuromuscular diseases (NMD)-Patient reported outcomes from a national survey
- I was worried about not being good enough”. Experiences and perspectives of parents living with a neuromuscular disorder – an exploration of everyday life challenges
- Activity and participation in young adults with Duchenne muscular dystrophy
Seneste projekter
- Projekt TRANSIT – Uddannelse og beskæftigelse hos unge med muskelsvind efter afsluttet grundskole
- Projekt COVID-19
- Unge med DMD
- Når forældre har muskelsvind
Seneste aktiviteter
- World Muscle Society 2015, Brighton and ERGO15, Denmark Poster: Problems in participation experienced by teenage girls with NMD
- 4th Nordic Conference on Rare Diseases. 2016. Danmark Presentation: Daily life as experienced by Danish teenage girls with a neuromuscular disorder
- WFOT-congress 2018 (World Federation of Occupational Therapists), Cape Town og ERGO18, Denmark Poster: Activity and participation in young adults with Duchenne muscular dystrophy
Publikationer
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Charlotte Handberg, Ulla Werlauff, Ann-Lisbeth Højberg
27/04 2022
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Handberg C, Werlauff U, Højberg AL, Knudsen LF.
PLoS One. 2021 Jun 30;16(6):e0253715. doi: 10.1371/journal.pone.0253715. PMID: 34191825; PMCID: PMC8244874.
30/06 2021
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Handberg C, Myrup P, Højberg AL
I: Disability and Rehabilitation. 2020
01/08 2020
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Activity and participation in young adults with Duchenne muscular dystrophy
Ann-Lisbeth Højberg
Poster
01/10 2018
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Adolescent and female with a neuromuscular disorder: An unexplored issue
Ann-Lisbeth Højberg, Jørgen Jeppesen
Published in the Treat-NMD Newsletter, September 2017
01/08 2017
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Otto C, Steffensen BF, Højberg AL, Barkmann C, Rahbek J, Ravens-Sieberer U, Mahoney A, Vry J, Gramsch K, Thompson R, Rodger S, Bushby K, Lochmüller H, Kirschner J.
I: J Neurol. 2017 Apr;264(4):709-723. doi: 10.1007/s00415-017-8406-2. Epub 2017 Feb 7. PMID: 28175989.
01/02 2017
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Problems in participation experienced by teenage girls with NMD
Ann-Lisbeth Højberg
Poster
01/10 2015
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Health related quality of life in European adults with DMD – results from the CARE-NMD project
BF Steffensen, U Werlauff, AL Højberg et al.
Poster
01/01 2015
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Werlauff U, Højberg A, Firla-Holme R, Steffensen BF
I: Qual life Res 2014; 23 (5)1479-88
01/01 2014
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Examining the effect of networks for students with special educational needs
Højberg, Ann-Lisbeth, Jeppesen, Jørgen
I: Journal of Disability Research, Vol. 14, No 2, 2012, p.126-147.
01/06 2012
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Indlæring hos drenge med Duchennes muskeldystrofi
Kjærgård H, Støvring B, Tromborg, A, Højberg A-L
Artikel trykt i Pædagogisk psykologisk tidsskrift 2010,5: 384-395.
01/05 2010
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Ann-Lisbeth Højberg, Birgit Fynbo Steffensen
Developmental Neurorehabilitation, 11 March 2008
01/03 2008
Aktiviteter
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World Muscle Society 2015, Brighton and ERGO15, Denmark Poster: Problems in participation experienced by teenage girls with NMD
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4th Nordic Conference on Rare Diseases. 2016. Danmark Presentation: Daily life as experienced by Danish teenage girls with a neuromuscular disorder
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WFOT-congress 2018 (World Federation of Occupational Therapists), Cape Town og ERGO18, Denmark Poster: Activity and participation in young adults with Duchenne muscular dystrophy
