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Annette Faber Mahoney
Kommunikations- og udviklings-medarbejder, cand.ling.merc., MSA
anmo@rcfm.dk- Webredaktør
- Oversættelse
- Forskningsformidling
Seneste publikationer
- New medicine for neuromuscular diseases: An evolving paradox for patient and family hopes and expectations
- A cross‑sectional evaluation of acceptability of an online palliative rehabilitation program for family caregivers of people with amyotrophic lateral sclerosis and cognitive and behavioral impairments
- Predictors of Health-Related Quality of Life in boys with Duchenne muscular dystrophy from six European countries
- The role of patient registries in an international study of care in Duchenne muscular dystrophy
Publikationer
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Annette Mahoney, Charlotte Handberg
19/09 2022
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Lene Klem Olesen, Karen la Cour, Heidi With, Annette Faber Mahoney, Charlotte Handberg
25/05 2022
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Otto C, Steffensen BF, Højberg AL, Barkmann C, Rahbek J, Ravens-Sieberer U, Mahoney A, Vry J, Gramsch K, Thompson R, Rodger S, Bushby K, Lochmüller H, Kirschner J.
I: J Neurol. 2017 Apr;264(4):709-723. doi: 10.1007/s00415-017-8406-2. Epub 2017 Feb 7. PMID: 28175989.
01/02 2017
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The role of patient registries in an international study of care in Duchenne muscular dystrophy
Rodger S et al.
