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Our research is always inspired by real life and must always find its way back to real life
With the establishment of RCFM’s Research and Development Centre in 1985, RCFM has been able to accumulate, generate and communicate knowledge about the physical, mental and social implications of NMD.
The foundation for all research and development is a close collaboration between RCFM’s researchers and rehabilitation professionals. Research questions and development projects are always rooted in problems formulated by patients or observed in the meeting with our patients.
The short distance between researcher and rehabilitation professionals further ensures that knowledge generated by the researcher is quickly implemented in the clinic for the benefit of both patients and professionals.
An international partner
The Research and Development Centre is committed to staying updated on the latest international research and treatment methods and passing it on to our patients and partners.
The Research and Development Centre collaborates with a large national and international network. The collaborative efforts and collaboration are systemized and intensified through our membership of the European Neuromuscular Centre (ENMC) and Treat-NMD.
Scandinavian network
Every other year, the Research Centre arranges and hosts the Brickless meeting where professionals from Sweden, Norway and Denmark meet to discuss the newest results within treatment and rehabilitation of neuromuscular diseases.
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Ulla Werlauff
Head of research, physical therapist, MSc, ph.d
[email protected]- Project management and supervisionLæs mere
- Measurement instruments
- Method
- Education -
Ann-Lisbeth Højberg
Occupational therapist, MSI
[email protected]- Young peopleLæs mere
- School and education
- Parents with NMD
- Rehabilitation -
Charlotte Handberg
Senior researcher, PhD
[email protected]- Rehabilitation and palliationLæs mere
- Patient involvement
- Interdisciplinary and intersectional challenges
- Qualitative method
- Project management and supervision -
Liv Brandstrup
Anthropologist, project manager
[email protected]- Patient education
- Project management
- Patient involvement -
Lone Knudsen
Phycologist, ph.d, researcher
[email protected]- Pain and psychological factorsLæs mere
- Grief and crisis intervention -
Lene Klem Olesen
Occupational therapist, MA educational psychology, ph.d. student
[email protected]- Relatives and health professionals (ALS)Læs mere
- Palliative rehabilitation
- Online rehabilitation
- Qualitative method
-projektledelse og formidling
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Annette Faber Mahoney
Communications and development, MA English, MA medical anthropology
[email protected]- Webeditor
- Translation
- Patient involvement
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Sofie Skoubo
Ph.d student
[email protected] -
Signe Versterre
ALS-konsulent, fysioterapeut, Cand. scient i Fysioterapi, Tovholder for internationalt netværk for ALS-fysioterapeuter
[email protected]/rcfmen- Respiration
- Kropsbårne hjælpemidler
- Træning
