Family guides

Receiving the best care can dramatically improve patients’ quality of life and even prolong life expectancy.

Consensus guidelines, which are agreed by doctors and patient groups across the world, describe how best to care for patients with neuromuscular diseases. The documents are especially aimed at doctors and professional health providers in the neuromuscular field but family friendly versions have been created for families and family doctors.

The family guides on spinal muscular atrophy (SMA), Duchenne muscular dystrophy (DMD), and congenital muscular dystrophy (CMD) are available in several languages.


DMD Family Guide

CMD Family Guide

SMA Family Guide